Introduction
  • Joined 6 years ago
Pages (1)
Pinned Items
Recent Activities
  •   Locksley reacted to this post about 3 days ago
    Group Introductions! I'm in a self management phase of having the autoimmune condition called psoriasis, which most commonly manifests in me as localized accelerated skin growth. It's not contagious but creates patches of thick skin in places where the boundary dries off and sheds everywhere. With me that process creates very strong histamine reactions at the site, like a mix of being burned and bitten. And if 'scratched' or otherwise agitated, the effected sites will grow in size and aggravation in an immune mediated response, locally at first but can react more broadly and create new sites anywhere on the skin. When its really angry the whole body tends to start to break out in almost a hive like cascade. And so with no medical cure, the options are a range of medical and non-medical treatments to dampen it. Each sufferer is different by the sounds of it, but I've tried to avoid the medical treatments as much as possible - just because I have seen too much abuse from the medical industry, and so without the science being able to focus on solving the cause I instead worked in dealing with its effects as best I could myself. It started in my mid-20's, and has gotten worse with age, until about 3 years ago I worked out how to self manage it and it was like flicking a switch. Not cured, but a tangible and healthy solution to keep it quite calm. For me it's a sensitivity in the gut, which is reacting to the conditions in the gut in such a way that manifests in the condition known as psoriasis. It's all about the food and gut flora. I've gone from about an angry 40% of body effected to about 15% calmly effected, and seem to be stabilized there, which for me is 'huge'. At angry 40% it was like sinking in lava constantly, but at calm 15% I can actually go most of the day and not notice it. Nights are a bit dodgy still, but nothing compared to previously. So yea, treatment for me is all about what I eat. It's hilarious to think that both me and my partner did a better job then the medical establishment in dealing with serious medical conditions.... just by the management of what one puts in their gut!! As a 44 year old bloke who had hippy-ish parents who were into naturopathy and healthy stuff, I always had an interest in this sort thing (even studied medical biotechnology at Uni for awhile), so it's nice to think they were on to something. Science has only in the last decade really noticed the importance of the gut. It is after all where all the midichlorians live At worst, regularly I was only having really tiny doses of an OTC tablet containing Codeine phosphate, Doxylamine succinate, and Paracetamol to help me go to sleep. With stuff like that I focus on taking smaller doses each time and teaching myself to react as if it were stronger... instead of using it to knock me out I use it to signal myself to knock myself out. And I just put up with the pain the rest of the time as a challenge, but it did impair activity through limitation in range of movement (through the skin being so tight at those sites) and dealing with the barrage of pain exhausted me really quite fast. I haven't had a real job in decades!! Once I did a course of Prednisone to give myself a break from the pain, when it was at its worst.... and while it cleared up entirely while my immune system was shut down, its apparently not good for long term use, and it of course came back as before once I was off it. It gave me a chance to feel normal for a fortnight which was amazing!!! But what is better is that now I take nothing!! I do have some of those OTC tablets left in my bedside table for the once or twice a month rough moment. My medicine is what I do and do not eat, and while its not entirely gone (and I can feel it like persistent mozzie bites all over my legs), I'd be ok if it just didn't get any worse again! Anyway, where I'm at now is trying to keep on top of it, dealing with it when it gets out of whack, and seeing if I can get it down to 0%.
    Post is under moderation
    Stream item published successfully. Item will now be visible on your stream.
  • Adder updated their profile
    Post is under moderation
    Stream item published successfully. Item will now be visible on your stream.
  • Adder joined the group, Those Who Count Spoons
    Post is under moderation
    Stream item published successfully. Item will now be visible on your stream.
  • Adder updated their profile cover
    0
    0
    0
    0
    0
    0
    Post is under moderation
    Stream item published successfully. Item will now be visible on your stream.
  • Adder updated their profile
    Post is under moderation
    Stream item published successfully. Item will now be visible on your stream.
  •   JosephCrawley reacted to this post about 3 weeks ago
    May the Fourth be with you!!! Pic by PGA Tour of Australasia.
    Post is under moderation
    Stream item published successfully. Item will now be visible on your stream.
  • xSuiadanTalvirx is now friends with Adder
    Post is under moderation
    Stream item published successfully. Item will now be visible on your stream.
  •   Adder commented on this post about 1 month ago
    Adder updated their profile picture
    0
    0
    0
    0
    0
    0
    Post is under moderation
    Stream item published successfully. Item will now be visible on your stream.
There are no activities here yet
Unable to load tooltip content.