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  •   Kobos reacted to this post about 1 month ago
    Finishing up with the first full month of the experimental clinical trial I'm on. I'll be heading into the doc's office on Thursday 10/18/18 for a CT scan and blood tests to get an initial look at how well the medication is or is not working.

    Thankfully, the worst of the possible side effects has not come to pass and my vision is completely normal. I saw the optometrist yesterday and everything is completely normal. The other side effects, however, holy S%*T! For the first time since my cancer fight began I am actually seeing side effects that the doctor has warned me about, and they are kicking my ass. The fatigue is the worst I've felt so far. I'm out of breath after putting pants on and I have to nap after I take a shower. Even eating makes me tired. I also have pretty bad acne/rash on my face, neck and back that pops up constantly and likes to bleed if I scratch it wrong or accidentally rub it on clothing. I'll be buying new bed sheets and pillow cases because of it, that's for sure. I've got a pretty regular pain medication schedule worked out that seems to be effective, so that's good. I've had to learn how to accomplish certain work tasks while I'm loopy on Percocet though. That means a few extra minutes of proofreading before I send any emails LOL.

    Besides that, my emotional state has been okay except that for the first time I really do get a sense that this will eventually wear me down to nothing. It might take another ten years, but there is no way I can keep up this kind of abuse of my body and not just give in to a nice long nap every afternoon. That would be great if I didn't have bills to pay and, you know, life to live.

    Spiritually, I'm leaning on my Jedi faith to get me through the hard times and I'm sharing my faith with others at the hospital through my own personal ministry. It has been good to be able to counsel others when they are feeling down or frightened. I also officially presided over my first wedding ceremony as a Licensed Minister of the Force and it went very well! I was proud to represent our Temple and Jediism in general. I've already had a few questions about doing ceremonies for others in the future. It will depend on my health, of course, but it could become another service I can offer through my ministry.

    Well, I guess that's the latest. As always, I could use a few more spoons than I have, but I'm making use of what I'm given and still LIVIN' THE DREAM!
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  •   zxSnake reacted to this post about 1 month ago
    How many zombies would Rob Zombie rob if Rob Zombie could rob zombies? It's a fair question, people.
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  • Ambert The Traveller is now friends with Senan
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  •   vladucard reacted to this post about 2 months ago
    "Nobody exists on purpose. Nobody belongs anywhere. We’re all going to die. Come watch TV."

    For those of you unfamiliar with the Adult Swim show Rick & Morty on Cartoon Network, this might seem a little harsh, but trust me, it is full of wisdom like this that will sneak up on you when you least expect it.
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  •   Zero Storm commented on this post about 2 months ago
    There is no greater feeling of abundance and joy than going from scraping the bottom of an old peanut butter jar to cracking a new one and just slathering it everywhere with no regard for the laws of man or God. Life's little pleasures!
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  • Onllwyn is now friends with Senan
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  • Senan updated his profile
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  • Winrah76 is now friends with Senan
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  •   Nakis reacted to this post about 2 months ago
    My insurance company authorized my participation in a clinical trial today. Glad to say I won't be going bankrupt just yet in order to treat my cancer.
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  • Senan updated his profile
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